A new national patient registry from NIH will let people with Down syndrome and their families create customized patient profiles, access health histories and receive medical care reminders. If patients and families provide consent, clinicians and researchers could use the registry to contact individuals who might be interested in participating in clinical studies. EHR Intelligence, NIH release.
from iHealthBeat http://feedproxy.google.com/~r/Ihealthbeat/~3/-Y3yIaK_vEQ/nih-to-launch-national-patient-registry-on-down-syndrome.aspx
